![]() Insufficient external resources and supports, for example inadequate disability services, lack of useful social support.Inability to take a break from stress that is so pervasive (“How do you take a break from life?”).This may be due to trauma, fear, lack of assistance in learning how, and a history of negative responses from others when they tried. Poor boundaries or self-advocacy with respect to saying no, taking a break, or asking for help.Gaslighting or dismissal when attempting to describe the autistic burnout, for example being told that everyone has these experiences, that they just need to try harder, or that they are making it up.They also described barriers to getting support or relief from the stress. Life-changes and transitions that are stressful for anyone, for example transitioning from school to work, experiencing a mental health crisis, or the death of someone close.Stress from living in a world not set up to accommodate autistic people, for example managing the stress of having to be in noisy environments.Difficult or unreachable expectations from family, school, work, or society in general.Masking their autistic traits, for example by suppressing autistic behaviours, pretending to be non-autistic, or working very hard to act in a non-autistic way.People described a collection of life stressors. Some people related an increase in suicidal ideation and suicidal behaviour. They also talked about a lack of empathy from neurotypical people, who had difficulty understanding or relating to the autistic person’s experiences. They talked about struggling with independent living, loss of self-belief, and being frightened that the loss of skills from the autistic burnout might be permanent. ![]() Many highlighted difficulties with their health, especially their mental health. Many first experienced autistic burnout during puberty, graduation from secondary education, or at other times of transition and changes in developmental expectations.Īutistic burnout had many negative effects on their lives. They described it as affecting every part of their lives and lasting for long periods of time. The research participants describe the experience of autistic burnout as chronic exhaustion, loss of skills, and reduced tolerance to stimulus. It is characterised by pervasive, long-term (typically 3+ months) exhaustion, loss of function, and reduced tolerance to stimulus. Definition of autistic burnoutįrom what we learned we created the following definition of autistic burnout.Īutistic burnout is a syndrome conceptualised as resulting from chronic life stress and a mismatch of expectations and abilities without adequate supports. The study involved interviews with autistic adults and analysis of public internet sources. Academic Autism Spectrum Partnership in Research and Education (AASPIRE) conducted a qualitative study to better understand and define autistic burnout (Raymaker et al. This includes what autistic burnout feels like, why it might happen and what can be done to prevent it.Īutistic people often talk about autistic burnout as a source of distress, but it’s just starting to be recognised in wider conversations. Gift Aid and making your donation go furtherĭr Dora Raymaker, Research Assistant Professor at Portland State University, discusses research exploring autistic people's experiences of autistic burnout. How your employee donations make a difference ![]() Our patron, president and vice presidents ![]() Adult residential and supported living service vacancies
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